One year ago I was privileged with the ability to ‘come back home’ and again be a full time homemaker, mother, and caregiver. I had a huge list of goals that I desired to accomplish and put to ticking them off one at a time.
Read moreWhen living with Cystic Fibrosis the ideal care includes quarterly clinic visits. At at each of these appointments our son (currently 10) will be cared for by many different specialized medical staff members. His vitals are always taken by a Nurse at check-in, he always does a Pulmonary Function Test with a Respiratory Therapist, and […]
Read moreAlthough I refuse to acknowledge that Cystic Fibrosis runs our life I will quickly admit that it is very seriously A Monkey On Our Back. There are two very true things about living in a small space with CF. (I’m not quite willing to call a fifth-wheel a ‘tiny’ home.) ONE: You have to keep […]
Read moreDriving the Alcan. Or as it’s now known, The Alaska Highway. It’s the long aspiring dream of so many people. Retire and take an RV trip all the way to Alaska. The adventure of a lifetime! But I guess we’re not most people. First, we’re FROM Alaska. Second, I think when most people envision their […]
Read moreAfter Mr. Nathan was issued the rest of his gear he quickly got to work training and learning. There are a lot of parts to becoming a firefighter/EMT and Fireman Duley as been working very hard. He has gotten better at donning and doffing his gear quickly, and how to use webbing to rescue a […]
Read moreIt’s our last day in California and we road trip from Nice through Napa to San Fransisco. I was very excited to find the charcuterie I’d been planning to visit, and we saw the aftermath of this summer’s fires all around us. Perhaps the best part of our whole trip though, we got to meet […]
Read moreThe third day of our vacation, we learn more about the history of the Clear Lake Resort in Nice, explore the western shore of Clear Lake, visit the Lakeport fire station, and go swimming in California in December. (Nathan is slowly learning to swim.) I try my hand at some unique French cooking, (Frog Legs!), […]
Read moreOur second day on vacation we chose to check out the area a little bit. We explore the nearby town of Lakeport, get to see some really cool new birds, and try something new for dinner!
Read moreI know you won’t believe it, but we actually took time off to go on vacation! Our flights were great, but long as usual, and we got to go over the golden gate bridge at night, but right off the bat you can see that things are not exactly going as we had planned…. There […]
Read moreThis is just a short little video about our process to sort and refill Nathan’s pills each month. It also shares a little bit of information about what they do and why he needs them. I am grateful everyday for the life saving they provide.
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