When living with Cystic Fibrosis the ideal care includes quarterly clinic visits. At at each of these appointments our son (currently 10) will be cared for by many different specialized medical staff members. His vitals are always taken by a Nurse at check-in, he always does a Pulmonary Function Test with a Respiratory Therapist, and […]
Read moreAlthough I refuse to acknowledge that Cystic Fibrosis runs our life I will quickly admit that it is very seriously A Monkey On Our Back. There are two very true things about living in a small space with CF. (I’m not quite willing to call a fifth-wheel a ‘tiny’ home.) ONE: You have to keep […]
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